Dear Research Advocate: We saw the power of a robust public health force, integrated public health programs, and an innovative R&D pipeline this week as the World Health Organization declared the recent Ebola outbreak contained . Think of the lives and dollars that could be saved if global health were accorded the priority it deserves on a sustained basis, rather than gaining traction only when crises are upon us! We have updated our Top Ten Reasons to invest in global R&D. Use this terrific Kaiser Family Foundation primer on all things global health policy-related, and make the case for global health research as a strategic asset on social media or with your congressional...
Around one in five American adults lives with a mental illness, such as depression, bipolar disorder, or an anxiety disorder, according to the National Institute of Mental Health. Many of these people also have serious, often preventable, physical illnesses, but often don’t get the care they need for those problems. As a result, people with serious mental illnesses die on average 10 to 20 years earlier than others. These illnesses affect minority communities to a substantially greater degree than they do non-Hispanic white populations. Due to the stigma associated with mental illness, difficulty accessing effective treatments and qualified providers, and a lack of clear evidence to support...
Dear Research Advocate: In United for Medical Research’s terrific Amazing Things Podcast series, chairman of the House Labor-HHS Subcommittee, Tom Cole (R-OK) talks about what investments in research mean for the health, well-being and prosperity of America and Americans. Listen in - Chairman Cole can teach us all a thing or two about high impact advocacy! It is important for stakeholders in research to take time to demonstrate the utility of research and innovation investments, speaking out to current and future Congressional champions on both sides of the aisle. With that aim in mind, Research!America has expanded our bipartisan candidate engagement initiative for the midterm elections,...
Every family whose child receives a diagnosis of a rheumatic disease (like juvenile idiopathic arthritis (JIA), lupus, dermatomyositis, vasculitis or scleroderma) wants the best treatment and outcomes for their kid. And while over the past 20 years, new medicinal discoveries have improved the lives of children with rheumatic diseases, it’s still incredibly difficult to determine which treatment is best for your child based on their disease. Traditional large research studies (e.g., randomized controlled trials) are costly and slow. These studies also encounter challenges, like finding enough patients with the same disorder, when looking for people with rare diseases (like most pediatric...
The July/August 2018 newsletter is now online . Highlights from this month include: Research!America has announced the Herbert Pardes Family Award for National Leadership in Advocacy for Research which recognizes individuals who, throughout their careers have – like Research!America board member Dr. Herbert Pardes - demonstrated distinguished leadership and sustained commitment to public engagement and advocacy for research. Leaders in government, industry, patient advocacy and academia will be among the panelists for Research!America’s 2018 National Health Research Forum on Thursday, September 6 at the Newseum in Washington, D.C. The National Foundation to End Child Abuse and Neglect (...
Dry eye disease (DED) afflicts an estimated over 30 million people in the United States alone, and nearly half of U.S. adults experience dry eye symptoms regularly. Experts say the pain associated with DED can make it feel as if there is sand in your eyes, or it can be so severe that you may not be able to open your eyes. During a briefing in Washington, D.C. on July 11 hosted by the Tear Film & Ocular Surface Society (TFOS) in partnership with the Alliance for Eye and Vision Research (AEVR), TFOS founder Dr. David Sullivan noted that there is no treatment for DED but “with research funding, we hope to develop a cure.” Researchers study factors associated with DED such as autoimmune...
Dear Research Advocate: In welcome news, Congress is making progress on FY19 appropriations. The Senate Appropriations Committee has completed work on all 12 bills and Chairman Richard Shelby (R-AL) has said that the full Senate may consider a package containing the Defense and Labor-HHS bills during the week of July 23rd. We can’t count our chickens before they hatch, but this is good news indeed, considering the Senate has not passed the LHHS bill before fiscal year-end since 2007. Yesterday, the full House Appropriations Committee passed their version of the Labor-HHS spending bill, which includes $38.3 billion for NIH, an additional $1.25 billion over the FY18 level, an additional $427M...
Dear Research Advocate: Out this week: new survey data from the Pew Research Center reaffirming that Americans are strongly supportive of federal investments in medical, engineering and basic science research, with overall agreement at the 80% level that these investments ‘pay off.’ Of concern, however, is that voters who identify as strongly conservative are significantly more likely to say that “private investment will ensure that enough scientific progress is made, even without government investment.” All of us in the stakeholder community have more work to do to convey that when the government supports research, all parties -- private sector, government and the public -- stand to...

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