Research Partners Forums
Research Partners Forums are open dialogues among leaders in academia, business, government, non-profits and the public on subjects related to improving health through research.
Stigma remains a top barrier to treatment for mental illness among minority groups, said panelists during a Capitol Hill briefing hosted by Research!America, the Patient-Centered Outcomes Research Institute (PCORI), the National Hispanic Medical Association (NHMA) and the National Medical Association on June 13, 2018.
Flu pandemics and other disease outbreaks underscore the need for vaccines and public health infrastructures to protect individuals against global health threats, said leaders representing government, scientific societies and advocacy groups at a briefing hosted by Research!America and the American Society for Microbiology (ASM) at the Newseum in Washington, D.C. on May 21.
Fostering strong partnerships between clinicians and researchers is the key to speeding the discovery and implementation of new asthma treatments, said Judith Woodfolk, MBChB, Ph.D., professor of medicine, Division of Asthma, Allergy and Immunology, Department of Medicine, University of Virginia School of Medicine, during Research!America’s asthma research briefing in Washington, D.C. on May 15.
When Grace Anne Dorney Koppel was diagnosed with chronic obstructive pulmonary disease (COPD), a progressive disease that makes it hard to breathe, her doctors told her she had 3-5 years to live. She had that conversation with her doctor nearly two decades ago. Today, she is a passionate advocate for COPD research and treatment. Noting that COPD patients have had the same treatments for 30 years, Koppel said “the clock is ticking and we cannot breathe.”
The percentage of working-age civilians in West Virginia who are employed has dropped below 50% for the first time in decades, partly due to a steep rise in opioid addiction across the state, said Senator Joe Manchin (D-W.Va.) during Research!America’s program “West Virginia Research and Innovation: A Catalyst for Better Health and Economic Growth” on October 16 at Shepherd University. Sen.
Of the top 10 causes of death in the U.S., Alzheimer’s disease is the only condition without a cure, treatment or means of prevention. More than five million Americans live with Alzheimer’s today, and the number is expected to triple by 2050.
Stronger partnerships between the public and private sector would help ensure patients have access to new medicines as a result of new discoveries. In a keynote speech at Research!America’s National Health Research Forum on September 7 in Washington, D.C., Mikael Dolsten, M.D., president of worldwide research & development, Pfizer, said the U.S. is a leader in worldwide R&D but sustained funding levels for the National Institutes of Health (NIH) and a regulatory system built for the 21st century are critical to build on our success.
Jaime Sanders has suffered from migraines since she was eight-years-old. Despite her chronic pain, she has “always managed to find the strength and will to move forward in life.” Sanders, a patient advocate and blogger, was joined by experts in different areas of migraine research and treatment to discuss the societal burden of this debilitating disease during a Research!America Capitol Hill briefing on June 15, 2017.
“Clinical trial design, cost, regulatory burden and recruitment are some of the challenges associated with clinical research,” said Victor J. Dzau, M.D., president, National Academy of Medicine and Research!America board member.
Research and development involves collaboration, investments and risk to ensure new treatments benefit patients, according to panelists at a Capitol Hill briefing on February 14 hosted by Research!America and the Congressional R&D Caucus. The briefing “Medical Innovation 101” highlighted various aspects of the research continuum from basic to post-market research.