Research Partners Forums
Research Partners Forums are open dialogues among leaders in academia, business, government, non-profits and the public on subjects related to improving health through research.
Research is making and continues to make a difference in the lives of individuals across the US and around the globe with rare diseases.
Research is making a difference in the lives of thousands of people with rare diseases, but there is room for more to be done, as the featured guests discussed at Research!America’s reception event, “Rare Diseases: Perspectives on Progress.” The reception, held February 26, 2019, at the Washington Court Hotel, featured a panel of powerful advocates who highlighted the importance of research in improving lives.
Even as dozens of elections across the nation remained undecided or subject to recounts, it was clear that a divided Congress – and a divided nation – would have a significant impact on the future of medical and scientific research. Research!America’s Post-Election Briefing on November 8, at the American Association for the Advancement of Science (AAAS) in Washington, D.C.
“Oral health is often overlooked and undervalued,” according to Research!America’s Director of Policy and Programs Sara Chang who opened a Capitol Hill briefing on the topic October 10, 2018. A panel of experts explored issues related to how oral health is connected to systemic health, the need for more research, and policy issues that can help increase understanding of oral health.
More must be done to ensure robust funding for research that is focused on diseases with disproportionate impact, like migraine. During a panel discussion hosted by Research!America on October 3, 2018 on Capitol Hill, speakers called for more research and workplace accommodations for the 40 million Americans living with migraine.
Stigma remains a top barrier to treatment for mental illness among minority groups, said panelists during a Capitol Hill briefing hosted by Research!America, the Patient-Centered Outcomes Research Institute (PCORI), the National Hispanic Medical Association (NHMA) and the National Medical Association on June 13, 2018.
Flu pandemics and other disease outbreaks underscore the need for vaccines and public health infrastructures to protect individuals against global health threats, said leaders representing government, scientific societies and advocacy groups at a briefing hosted by Research!America and the American Society for Microbiology (ASM) at the Newseum in Washington, D.C. on May 21.
Fostering strong partnerships between clinicians and researchers is the key to speeding the discovery and implementation of new asthma treatments, said Judith Woodfolk, MBChB, Ph.D., professor of medicine, Division of Asthma, Allergy and Immunology, Department of Medicine, University of Virginia School of Medicine, during Research!America’s asthma research briefing in Washington, D.C. on May 15.
When Grace Anne Dorney Koppel was diagnosed with chronic obstructive pulmonary disease (COPD), a progressive disease that makes it hard to breathe, her doctors told her she had 3-5 years to live. She had that conversation with her doctor nearly two decades ago. Today, she is a passionate advocate for COPD research and treatment. Noting that COPD patients have had the same treatments for 30 years, Koppel said “the clock is ticking and we cannot breathe.”