Integrating patient perspectives in research and development has become increasingly important to ensure medical treatments and services align with patient needs. FasterCures executive director Margaret Anderson and managing director Kimberly McCleary examined a number of programs and initiatives that are incorporating the patient voice in biomedical R&D and health care delivery in the article “On the path to a science of patient input,” published in Science Translational Medicine, a journal of the American Association for the Advancement of Science (AAAS).
The overall goal, the authors said, is to develop best practices for an effective patient-centered framework to assess the value of care. FasterCures reviewed more than 70 collaborative initiatives that are shaping patient-centered practices and policies.
Recommendations include training academic researchers, measuring the extent of patient engagement in research, integrating physicians and health professionals into the dialogue, increasing visibility of current research and tools, and building evidence to show which methods are working best. This is not a one-size-fits-all effort, the authors noted, and best practices must consider the needs of individual patient communities. To view the full article, click here.