Nearly one in four households include someone who suffers from migraine, however few effective treatments are available for patients. A panel of experts discussed the current state of migraine research, funding, and need for patient involvement during a webinar titled “What are the Barriers in Advancing Migraine Research?” on April 11 hosted by Research!America.
“Our voices are important,” said patient advocate Katie Golden who emphasized the need for patient centricity in migraine research. “Ask patients about the outcomes that are important to us. I believe that everybody throughout the entire process, whether you’re a researcher or scientist or salesperson of a drug, needs to be connected to the patient story and who they are ultimately trying to help.”
Dr. Robert Shapiro, Department of Neurological Sciences, Larner College of Medicine at the University of Vermont, said migraine is the least funded of the most burdensome diseases. He called for an aggressive recruitment of investigators to study migraine. Dr. Michael Oshinsky, program director, pain and migraine, National Institute of Neurological Disorders, described current funding opportunities for researchers at the NIH including the HEAL initiative, which aims to understand the origins of chronic pain.
To view a recording of the webinar, supported in part by Amgen, click here.