We’d all like to think that research for health is moving steadily toward the goal of finding solutions to what ails us. Unfortunately, support for research isn’t moving as steadily as patients need and we all expect. Federal funding increases to NIH, NSF, CDC, FDA and AHRQ that will help turbo-charge exciting new discovery and development is popular on a bipartisan basis, but stymied by the inability of the Congress and Administration to come to an agreement on overall budget levels. We could see cuts by the first of October – dramatic cuts, as much as 10%. There is so much at stake, and so much urgency for stakeholders. Please take a few minutes to join the rest of us in doing so.
It isn’t only funding that is slowing science, it’s also policy change. The Trump Administration recently announced several such changes that force fetal tissue research to the sidelines, despite its crucial role in combating such health threats as polio, HIV/AIDS, degenerative and congenital conditions, and more. Urge your elected officials to push back. Lives depend on advances that might now never see the light of day.
Some good news: legislation to reauthorize the Patient-Centered Outcomes Institute (PCORI) has been introduced in both Houses of Congress, as have bills to repeal the excise tax on medical device research and development. PCORI is forging new ground by turning the goal of patient-informed, patient-focused research into a reality, and repealing the twice suspended excise tax is a common sense strategy (diverting investment away from the development of new diagnostics and other medical technologies simply does not serve the public interest).
Whether we are calling for action or applauding it, we value your commitment to faster medical and public health progress and your partnership!