medical progress

Research!America will host an interactive panel discussion on June 20 titled, A World Without Disease: Can We Get There? , at the BIO International Convention in San Diego, California. During the session, experts from the regulatory, pharmaceutical, and advocacy sectors will discuss the implications of new technologies and the challenges of leveraging limited resources to maximize patient benefit. Research!America’s session will seek to address the question, “how can we capitalize on insights from the biotechnology industry and facilitate a coordinated effort to eradicate disease?”. To do so, Research!America board member William Hait, M.D., Ph.D. , global head at Janssen Research and...
Excerpt of an op-ed by Research!America President and CEO Mary Woolley published in the Huffington Post . As the new Congress sets priorities, there are strong indications that the political climate is ripe for a surge in science. Bipartisan support for the 21st Century Cures Initiative, a comprehensive study of roadblocks to medical innovation and development of new disease therapies and treatments, is slated to move forward with draft legislation early next year. The measure is expected to address six areas of reform: integrating patients’ perspectives into the regulatory process, modernizing clinical trials, fostering the future of science, investing in advancing research, incentivizing...
Dear Research Advocate: If you haven’€™t already heard, ’€œThrowback Thursday’€ is a weekly social media activity that celebrates unforgettable moments in our lives. Users of Facebook, Twitter or Instagram draw inspiration from old photos of family and friends or landmark events, and talk about them, accompanied by the hashtag #TBT. Wouldn’€™t it be great if today’€™s #TBT includes reflections on the impact of medical and health research on our lives and those of our loved ones — especially today, with the mid-term elections coming right up, with so much at stake for future generations? Consider how far we’€™ve come in medicine. This week marks the 100th birthday of Dr. Jonas Salk, who...
Dear Research Advocate: As I write, most members of Congress are on the way home for August recess. As anticipated, no further action has been taken on the appropriations front ’€“ or much else, for that matter. In terms of issues we care about: no movement on tax reform, which means no much-needed enhancement of the research and development tax credit; no repeal of the medical device tax; and no final passage of Fiscal Year 2015 appropriations bills. In upcoming letters I will talk in more detail about Capitol Hill-focused advocacy strategies through the election and beyond. In the absence of legislative action, some attention ’€“ in a bipartisan manner ’€“ is being given to research for...
One of the fundamental goals of the Ask Your Candidates! (AYC!) initiative is to ensure that medical progress takes its rightful place among the priorities candidates discuss as they vie for a seat in Congress. To further this and the central, voter education agenda of AYC!, we’€™ve launched an ad campaign on POLITICO.com. These ads, which will run through July 27 th , have three different frames, each of which poses a question on the topic of medical progress: 1) What will candidates for Congress do to help kids who need cures? 2) What will candidates for Congress do to help the 30 million Americans with a rare disease? 3) What will candidates for Congress do to help families grow old...
Selfies are a common form of expression on social media. They can be funny, serious, awkward or emotional. They can also be an impactful way of participating in a cause, which is a big reason we are launching a selfies/photo submission project for the Ask Your Candidates! national voter education initiative. As part of this effort, participants are encouraged to take a photo with a sign ( download here ), indicating why they support medical progress, or they can create their own sign, framing the issue in a way that speaks to their own experiences or organization’€™s mission. The goal is to generate buzz for the initiative and increase the volume of the conversation surrounding medical...
Excerpt of an op-ed by Research!America Chair The Hon. John E. Porter and Research!America Board member The Hon. Kweisi Mfume published in The Hill . The Hon. John E. Porter The Hon. Kweisi Mfume The value of innovation has captured the attention of policymakers as they debate the merits of federally funded medical and health research. There is clearly bi-partisan support for research but battle lines have been deeply drawn over funding for research agencies in this tight fiscal climate. The National Institutes of Health ’€“ the world’€™s leading funder of game-changing basic medical research – and other agencies contributing to the research pipeline are still affected by sequestration, the...
The increase for the National Institutes of Health is a step in the right direction to accelerate medical progress but we cannot sustain our nation’s engine of discovery with dollops of fuel; a more robust investment is critical to maintaining our pre-eminence in science and saving lives. Researchers are closer to understanding ways to effectively treat and prevent Alzheimer’s disease, cancer, diabetes and other health threats that exact a tremendous financial and emotional toll on patients and their families. Yet federal funding has failed to keep pace with the level of scientific opportunity, and Americans are aware of the disconnect. More than half of those surveyed say elected officials...
Dear Research Advocate: Today, June 5, is a milestone in our Ask Your Candidates! (AYC!) voter education initiative. Today is the culmination of 5 by June 5 , a nationwide push to encourage voters to ask their candidates about the priority of medical progress and encourage five others to do the same. There is still time for you to join us! Click here to send a message to the candidates running for House and Senate in your district . You can customize the message to include your personal reasons for supporting medical research or you can just click send on the message we’€™ve provided. In this case, it doesn’€™t just take a village, it takes a nation. Please help us reach voters in every...
Dear Research Advocate: Today, Chairwoman Barbara Mikulski (D-MD) released the Senate’€™s 302(b) allocations , which were approved by the Appropriations Committee. As you know from last week, the House 302(b) allocation for the Labor-HHS subcommittee is approximately $1 billion less in fiscal year 2015 than it was in FY 14.The Senate’€™s allocation for FY 15 is roughly the same as it was in FY 14. The bottom line is that, as expected, we have our work cut out for us to achieve the increases needed for the National Institutes of Health (NIH) and our nation’€™s other health research agencies. Fortunately, Senator Mikulski and other leaders from both sides of the aisle understand the...

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Funding research gives all of us a better chance of living a healthier life.
Pam Hirata, heart disease survivor