advocacy

Dear Research Advocate: This has been an important week for research, innovation and the power of advocacy. The Senate Appropriations Committee passed the Labor-H bill, which funds NIH, CDC and AHRQ, among other programs. The bill includes a well-justified, but nonetheless remarkable, $2 billion increase for NIH in FY17. However, CDC and AHRQ both receive cuts in the bill ($118 million and $10 million, respectively). While we applaud Chairman Blunt (R-MO), Ranking Member Murray (D-WA) and the Committee as a whole for their extraordinary determination to regrow the NIH budget, underinvesting in CDC and AHRQ is a costly mistake. Read our statement on the bill. It is important to note that...
Dear Research Advocate: It's graduation season and a time to consider the opportunities - and challenges - facing young people, our workforce, our economy and our nation. The director of the National Science Foundation (NSF), Dr. France A. Cordova challenged graduates at Rochester Institute of Technology ( video here ) to find the value in all experiences in life - even when the benefit might not be immediate - and to work with individuals from a wide variety of fields to address the grand challenges of our time. Her messages resonate as lessons learned from basic research, a venture rich in challenge, with gains not always clear at the outset, enhanced by collaborations across disciplines...
Dear Research Advocate: Every seat was taken in the main Carnegie Institution auditorium, and in a large overflow room as well, for a presentation on CRISPR genome editing delivered by Dr. Jennifer Doudna of UC Berkeley. The Monday evening program, which has open to the public, was co-sponsored by the Carnegie Institution for Science, the Council of Scientific Society Presidents and the Kavli Foundation. In addition to explaining how CRISPR-Cas9 is revolutionizing the ‘software’ of biology, Doudna reflected on ethical issues including the conduct of human germline research. In doing so she echoed one of the obstacles to advancing science listed in a slide deck presented by White House...
Dear Research Advocate: On Monday, the White House provided policymakers with an updated request for Zika funding, keeping the same top-line number of $1.9 billion but directing more resources toward vaccine research. On Tuesday, Senate Majority Leader Mitch McConnell (R-KY) told press he did not expect any opposition in addressing this “fairly significant public health crisis.” The need for Zika funding, and increased global health funding at large, was made even more evident this week with the release of a Global Health Technologies Coalition (GHTC) report outlining the need for the U.S. to robustly invest in global R&D. I had the opportunity to discuss the report with CNN -- check...
Dear Research Advocate: A report out this week by United Health Foundation concluded that an astonishing 72% of Americans have at least one of the five most impactful “unhealthy behaviors” (smoking, physical inactivity, insufficient sleep, excessive drinking or obesity). A White House report out this week quantifies the massive public health threat brought on by climate change and outlines the emerging issues, supporting evidence and the research required to curb these predicted effects. The need for improved public health is more evident then ever, and public health research is the best way to develop evidence-based, outcome-oriented interventions. Good thing it’s National Public Health...
This article appeared online on The Huffington Post blog. Twelve years ago on Friday the 13th, Lorri Carey’s life changed forever. Her neurologist asked during one of her appointments “what do you know about ALS (amyotrophic lateral sclerosis)?” Carey was a healthy and active 37-year-old with a rewarding sales career, supportive husband and two sons when her health had taken a mysterious turn. Carey knew her symptoms matched ALS, but the only thing she remembered about ALS from her research was that it was fatal. And in fact, she was told she only had two to five years to live. “The toughest part was telling my two sons who were eleven and thirteen that I was going to die. When ALS hits a...
Dear Research Advocate: We celebrated steadfast advocates for research to improve health at last week’s Advocacy Awards Dinner; pictures are now available. Champions like Whitehead awardees Chairmen Blunt and Cole keep us energized in the fight for medical research, even in the face of its virtual absence on the presidential campaign trail. Indeed, Research!America Chairman, Hon. John Porter, urged everyone present to take it upon themselves, as advocates, to make it clear how vital this election is to the future of science, research, and health. Since this is the mission of Campaign for Cures and related Research!America election-year activities, we can help you in your advocacy! Our...
2016 Research!America Advocacy Awards Dinner “We need to preserve and promote our science--in all of its forms-- because it represents the best of what we have been-- and must continue to be--as a nation,” according to Nobel Laureate Harold Varmus, M.D ., Lewis Thomas University professor, Weill Cornell Medicine, in remarks at Research!America’s 20 th Annual Advocacy Awards Dinner . Dr. Varmus received the Legacy Award at the event held March 16 at the Andrew W. Mellon Auditorium in Washington, D.C. He joined other honorees for the program which celebrated exemplary leaders in medical and health research advocacy whose advocacy efforts have been notably effective in advancing our nation’s...
More than 1.6 million people developed cancer in the U.S. in 2015, and 1 in 2 men and 1 in 3 women will be diagnosed with cancer over the course of their lives. Cancer also has a major fiscal impact: the economic burden totaled $263.8 billion in 2013, translating to nearly $900 per American. On March 10, 2016, Research!America, in partnership with AcademyHealth, American Cancer Society, and Celgene Corporation convened a panel of cancer experts to discuss how research is working to stop cancer. Dr. Lisa Simpson, president and CEO of AcademyHealth, started the conversation by outlining cancer innovation as a continuum. Basic research provides answers on how living organisms work and what...
Dear Research Advocate: Our Annual Members Meeting and Advocacy Awards Dinner are coming up on March 16. There is still time to register for both the meeting , where we will hear remarks from Senator Amy Klobuchar (D-MN), FDA Commissioner Robert Califf, M.D., and ALS patient-advocate Lorri Carey, and the dinner , where we will be presenting awards to a distinguished group of research and innovation champions and world class advocates. Join us for an inspiring day! Yesterday, the Senate HELP committee passed a second set of seven bipartisan “Innovations” bills, which focus on a range of topics including combination products, patient input on all aspects of clinical trials and health IT. See...

Pages

Sidebar Quote

Without research, there is no hope.
The Honorable Paul G. Rogers