advocacy

Dear Research Advocate: In welcome news, Congress is making progress on FY19 appropriations. The Senate Appropriations Committee has completed work on all 12 bills and Chairman Richard Shelby (R-AL) has said that the full Senate may consider a package containing the Defense and Labor-HHS bills during the week of July 23rd. We can’t count our chickens before they hatch, but this is good news indeed, considering the Senate has not passed the LHHS bill before fiscal year-end since 2007. Yesterday, the full House Appropriations Committee passed their version of the Labor-HHS spending bill, which includes $38.3 billion for NIH, an additional $1.25 billion over the FY18 level, an additional $427M...
Dear Research Advocate: Out this week: new survey data from the Pew Research Center reaffirming that Americans are strongly supportive of federal investments in medical, engineering and basic science research, with overall agreement at the 80% level that these investments ‘pay off.’ Of concern, however, is that voters who identify as strongly conservative are significantly more likely to say that “private investment will ensure that enough scientific progress is made, even without government investment.” All of us in the stakeholder community have more work to do to convey that when the government supports research, all parties -- private sector, government and the public -- stand to...
As America’s aging population increases, so too do concerns about the cognitive health of our nation’s seniors. Promoting and protecting the brain health of all Americans is a cornerstone of the Alzheimer’s Association’s mission. This year we are launching an ambitious research effort to better understand steps seniors can take to improve brain health and reduce their risk of cognitive decline. The Alzheimer's Association U.S. Study to Protect Brain Health Through Lifestyle Intervention to Reduce Risk (U.S. POINTER) is a two-year clinical trial to evaluate whether lifestyle interventions that simultaneously target many risk factors protect cognitive function in older adults who are at...
Dear Research Advocate: I moderated a session at the always-compelling Aspen Institute’s Spotlight Health conference at the end of last week. We had a robust and “un-sugarcoated” discussion on the dual imperatives of affordability and fast-paced medical progress. Among the many terrific conference sessions were two featuring the newly announced CEO of the Amazon-Berkshire Hathaway-Morgan Stanley initiative, Dr. Atul Gawande. (I should add that he mentioned that they will arrive at a better name!) During his interview with PBS NewsHour’s Judy Woodruff, Dr. Gawande, whom I am proud to say was our Isadore Rosenfeld Advocacy Awardee this past March, made the point that not being thoughtful...
Dear Research Advocate: Advocacy works! The Senate narrowly voted down (48-50) advancing the president’s rescissions package to the Senate floor, this preserving $800 million that otherwise would have been stripped from the Center for Medicare and Medicaid Innovation (CMMI). A special thanks to the Network for Excellence in Health Innovation (NEHI) and to other terrific advocates who helped make the case against the CMMI cut. The Senate Appropriations Committee has approved $8.1 billion for FY19 National Science Foundation funding, a 3.9% increase over FY18. While this number is slightly below the House-approved $8.175 billion, given that the overall increase to non-defense discretionary (...
Research!America, in partnership with the National Science Policy Network, has announced a request for proposals from student- and postdoc-led science policy groups for the alliance’s bipartisan civic engagement initiative for the 2018 midterm elections. The initiative will support student science policy groups interested in increasing their level of civic engagement and outreach to candidates running for national office to elevate the importance of scientific research during the midterm elections. Highly competitive proposals would be innovative, engage a diverse group of young scientists, and collaborate with other science policy groups for activities such as lab tours or roundtable...
Dear Research Advocate: The last few days have been wholly energizing. Yesterday, at the annual BIO International Convention, I had the opportunity to participate in a panel discussion titled “Science Needs Champions: Creating Collective Action to Advance Biotech Innovations for Humanity.” It wasn’t a “happy talk” session; the participants had no interest in candy-coating the challenges entailed in promoting faster progress while fostering the access and affordability needed to secure the highest return on that innovation. The discussion reinforced that there are no easy answers. Policymakers and the health care ecosystem, very much including the science community, need to work together,...
Dear Research Advocate: As of today, with eight months of the federal 2018 fiscal year elapsed, funding uncertainty persists for several programs. Given the recent Ebola outbreak in the Democratic Republic of the Congo, and the spread of measles closer to home, it is counterproductive in the extreme to cut federal support to combat disease outbreaks, yet that is included in the administration’s rescissions package and in a recently proposed Senate version as well. The clock for congressional action on rescissions will run out on June 22. That’s why it is timely to take a moment to (1) contact your congressional delegation urging no rescissions, and (2) reach out to those who may be...
Dear Research Advocate: On Tuesday, President Trump officially sent his rescissions package to Congress, impounding $15.4 billion in discretionary and mandatory spending authority and requesting that Congress rescind (cancel) it. While uncertainty still reigns, it appears that both Houses will, in fact, go through the process of formally reviewing the rescissions package. Members of Congress have a 45-day window to act; if they don’t, it’s back to business as usual. Here is a quick primer the Committee for a Responsible Federal Budget put together on the rescissions process. Among the discretionary and mandatory funding cuts included in the package: $400 million in Ebola funding and $800...
Dear Research Advocate, The Research!America 2019 Advocacy Awards nominations are now open! Act now to nominate the stellar advocates you want to recognize for outstanding leadership in medical, public health and other scientific research. The awards will be presented at our dinner on March 13, 2019. My recent letters have mentioned the possibility of the president sending a rescission package to Congress. At this point, it’s more a matter of when, not if he will request billions in “clawbacks” of already appropriated funds. It’s up to Congress to accept or reject the request. Think about it: for several fiscal years now, federal agencies have not had the benefit of fully functioning...

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The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient