medical progress

Dear Research Advocate, Mentioned here last week and the focus of an alliance member webinar earlier this week, the President issued an executive order (EO) extending and imposing new restrictions on worker and student visas. Our statement expresses opposition . Let’s face it — this EO essentially forces our nation to shoot itself in the foot. Bernat Navarro-Serer of the Johns Hopkins Science Policy Group (and a Research!America 2019 student microgrant recipient ) makes the case for sustaining our nation’s long-standing student visa programs . From the article: “ ...a suspension on work visas sends a strong message to current and future students seeking an education in the United States:...
Dear Research Advocate, Our nation’s research enterprise – and thus our society – has long benefitted mightily from the contributions of foreign-born scientists and engineers. In fact, nearly a third of the STEM workforce is foreign-born . A series of immigration-related actions by the executive branch, some already taken and others considered imminent, imperil academic, industry, and independent research across the country with consequences for our economy, our health, and our well-being. We are hosting an alliance member meeting on the state of play and advocacy opportunities next Monday, June 22 at 2 p.m. ET. Alliance members can register here . On Capitol Hill : Recent reports are that...
In January 2020, Research!America commissioned a survey to better understand the opinions of Americans regarding federal support for current research efforts. A combined 88% indicate that speeding medical progress should be a priority for both the President and for Congress with over 50% of respondents seeing this as “very important.” Information like this – gathered before our nation’s focus shifted to the COVID-19 pandemic – is a timely reminder of how strongly Americans desire federal support for biomedical research innovation. In the same survey, 46% of respondents elected that speeding medical progress should be a priority among candidates for the 2020 election. This sentiment has...
Eradicating disease seems like an elusive pipe dream but not if you ask Donna Cryer , president and CEO of the Global Liver Institute. “9,000 days ago, doctors told me I had seven days to live,” said Cryer. “I believe in our ability to continually adapt and innovate and conquer disease”. Cryer was joined by Research!America board member Dr. William Hait, global head, Janssen Research and Development, and fellow board member Dr. Mark McClellan, director, Duke-Robert J. Margolis Center for Health Policy, Duke University for an interactive panel discussion titled, A World Without Disease: Can We Get There? , at the BIO International Conference in San Diego, California on June 20. Research!...
Research!America will host an interactive panel discussion on June 20 titled, A World Without Disease: Can We Get There? , at the BIO International Convention in San Diego, California. During the session, experts from the regulatory, pharmaceutical, and advocacy sectors will discuss the implications of new technologies and the challenges of leveraging limited resources to maximize patient benefit. Research!America’s session will seek to address the question, “how can we capitalize on insights from the biotechnology industry and facilitate a coordinated effort to eradicate disease?”. To do so, Research!America board member William Hait, M.D., Ph.D. , global head at Janssen Research and...
Excerpt of an op-ed by Research!America President and CEO Mary Woolley published in the Huffington Post . As the new Congress sets priorities, there are strong indications that the political climate is ripe for a surge in science. Bipartisan support for the 21st Century Cures Initiative, a comprehensive study of roadblocks to medical innovation and development of new disease therapies and treatments, is slated to move forward with draft legislation early next year. The measure is expected to address six areas of reform: integrating patients’ perspectives into the regulatory process, modernizing clinical trials, fostering the future of science, investing in advancing research, incentivizing...
Dear Research Advocate: If you haven’€™t already heard, ’€œThrowback Thursday’€ is a weekly social media activity that celebrates unforgettable moments in our lives. Users of Facebook, Twitter or Instagram draw inspiration from old photos of family and friends or landmark events, and talk about them, accompanied by the hashtag #TBT. Wouldn’€™t it be great if today’€™s #TBT includes reflections on the impact of medical and health research on our lives and those of our loved ones — especially today, with the mid-term elections coming right up, with so much at stake for future generations? Consider how far we’€™ve come in medicine. This week marks the 100th birthday of Dr. Jonas Salk, who...
Dear Research Advocate: As I write, most members of Congress are on the way home for August recess. As anticipated, no further action has been taken on the appropriations front ’€“ or much else, for that matter. In terms of issues we care about: no movement on tax reform, which means no much-needed enhancement of the research and development tax credit; no repeal of the medical device tax; and no final passage of Fiscal Year 2015 appropriations bills. In upcoming letters I will talk in more detail about Capitol Hill-focused advocacy strategies through the election and beyond. In the absence of legislative action, some attention ’€“ in a bipartisan manner ’€“ is being given to research for...
One of the fundamental goals of the Ask Your Candidates! (AYC!) initiative is to ensure that medical progress takes its rightful place among the priorities candidates discuss as they vie for a seat in Congress. To further this and the central, voter education agenda of AYC!, we’€™ve launched an ad campaign on POLITICO.com. These ads, which will run through July 27 th , have three different frames, each of which poses a question on the topic of medical progress: 1) What will candidates for Congress do to help kids who need cures? 2) What will candidates for Congress do to help the 30 million Americans with a rare disease? 3) What will candidates for Congress do to help families grow old...
Selfies are a common form of expression on social media. They can be funny, serious, awkward or emotional. They can also be an impactful way of participating in a cause, which is a big reason we are launching a selfies/photo submission project for the Ask Your Candidates! national voter education initiative. As part of this effort, participants are encouraged to take a photo with a sign ( download here ), indicating why they support medical progress, or they can create their own sign, framing the issue in a way that speaks to their own experiences or organization’€™s mission. The goal is to generate buzz for the initiative and increase the volume of the conversation surrounding medical...

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