medical research

A Weekly Advocacy Message from Mary Woolley: The Senate is busy and so are we

By Mary Woolley on August 23, 2018

Dear Research Advocate: This morning, the Senate Commerce, Science, and Transportation Committee held a hearing with Dr. Kelvin Droegemeier, the nominee for director of the White House Office of Science and Technology Policy (OSTP). Committee Chairman John Thune (R-SD) said Dr. Droegemeier is eminently well qualified to lead OSTP and he hopes for a speedy confirmation. Use this editable email to reinforce that sentiment with your Senators! You can read Dr. Droegemeier’s testimony for the hearing here . Also in the Senate today, the Senate Health, Education, Labor and Pensions (HELP) Committee held a hearing on "Prioritizing Cures: Science and Stewardship at the National Institutes of Health...

A Weekly Advocacy Message from Mary Woolley: Three ways to let the Senate know your views

By Mary Woolley on August 16, 2018

Dear Research Advocate: President Trump signed the John S. McCain National Defense Authorization Act for Fiscal Year 2019 (NDAA), authorizing $716 billion in spending for the Department of Defense (DoD). R&D features prominently, including the Congressionally Directed Medical Research Program ( CDMRP ), the WRAIR Labs, and other medical and public health research pivotal to domestic and global health security. A particularly compelling example of the value of defense research is the recent story of the youngest person to receive a face transplant in U.S. history, part of a research study DoD funded because of its critical applications for wounded warriors. Read more in this USA Today...

Creating Collaborative Treatment Plans for Patients with Pediatric Rheumatic Diseases

By Guy Eakin, Ph.D. on July 17, 2018

Every family whose child receives a diagnosis of a rheumatic disease (like juvenile idiopathic arthritis (JIA), lupus, dermatomyositis, vasculitis or scleroderma) wants the best treatment and outcomes for their kid. And while over the past 20 years, new medicinal discoveries have improved the lives of children with rheumatic diseases, it’s still incredibly difficult to determine which treatment is best for your child based on their disease. Traditional large research studies (e.g., randomized controlled trials) are costly and slow. These studies also encounter challenges, like finding enough patients with the same disorder, when looking for people with rare diseases (like most pediatric...

Americans Say Candidates Running for National Office Should Prioritize Funding for Research

By Research!America on March 13, 2018

In a recent survey, a strong majority of Americans (80%) say candidates running for Congress should have a basic understanding of scientific issues, and more than two-thirds (68%) say candidates should have a science advisor. The findings underscore the importance of elevating scientific research and innovation in the midterm elections. As part of Your Candidates-Your Health, Research!America and member organizations are sharing relevant survey data, fact sheets, reports and other materials with candidates and voters to ensure robust investments and policies favorable to public and private sector research are among national priorities this election season. Cutting-edge research is critical...

The Kidney Cancer Association Launches Campaigns to Raise Awareness

By Kidney Cancer Association on March 8, 2018

The Kidney Cancer Association (KCA) is the world’s first and largest international charity dedicated specifically to the eradication of death and suffering from renal cancers. KCA is a charitable organization made up of patients, family members, physicians, researchers and other health professionals from around the world. KCA funds, promotes and collaborates with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA) and other institutions on research projects. We also educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels in the United States and globally. Every March...

All of Us Research Program Seeks to Empower Patients, Healthcare Providers

By Izzy Okparanta on August 4, 2017

Imagine a world in which researchers can accurately measure a person’s risk of developing a wide range of diseases and then provide them with individualized methods of prevention, treatment and care. That world is what the National Institutes of Health (NIH)’s All of Us Research Program is striving to create. All of Us seeks to enroll one million or more volunteers whose biological samples, along with lifestyle and health information, will be analyzed to give researchers better insights into the biological, environmental and behavioral factors that lead to disease. “So much of what we’ve done in medicine over the years has not really taken into account individual differences,” said Dr...

Turning Scientific Discoveries into Health: NIH 101

By Elizabeth Sierminski on July 17, 2017

The National Institutes of Health (NIH) is the “crown jewel of federal spending,” said Dr. Keith Yamamoto at a Capitol Hill briefing sponsored by the Coalition for the Life Sciences and the Congressional Biomedical Research Caucus on July 14 titled, NIH 101: An Introduction to the National Institutes of Health. Yamamoto, vice chancellor for research at the University of California, San Francisco and Research!America board member, was the featured speaker at the event, sponsored by the Coalition for Life Sciences and the Congressional Biomedical Research Caucus. He discussed the mission and budget of the NIH, as well as the rigorous scientific review process that ensures the budget achieves...

Recommendations for the Future of NIH

By Research!America on November 17, 2016

A new report prepared by leading scientists, thought leaders and policy experts, A Vision and Pathway for NIH , includes recommendations for the new Administration to further advance the nation’s leading biomedical research and health agency-- the National Institutes of Health (NIH). The goal is to better align agency organization and policies with present and future strategies for achieving the highest impact in research and training, and improving health outcomes. The report, written by an ad hoc working group, led by Research!America board member Keith Yamamoto, Ph.D., Vice Chancellor for Science Policy and Strategy; Director, UCSF Precision Medicine; Vice Dean for Research, School of...

A Weekly Advocacy Message From Mary Woolley: Making the lives of Americans Better, Safer and More Prosperous

By Mary Woolley on November 10, 2016

Dear Research Advocate: A very close election has entered the history books, in the process laying bare the profound divisions that will challenge all our elected representatives as they seek to unify and heal the nation. We have been deluged with questions about the impact of a Trump Administration on science. A useful primer is his answers to the ScienceDebate.org questionnaire that we and several other groups worked together to create. For example, President-elect Trump says this: “...the federal government should encourage innovation in the areas of space exploration and investment in research and development across the broad landscape of academia.” He also says this: “Though there are...

Scientists Are Urging Candidates to Discuss Medical Progress

By Research!America on May 9, 2016

With the Presidential race narrowing and congressional races heating up, issues surrounding the health of Americans will likely come to the forefront. Scientists committed to reducing the burden of disease and finding cures are speaking up and urging all candidates to share their plans to advance medical progress. Public policies in support of medical innovation are increasingly important to address health threats that claim millions of lives and disrupt our economy. If elected, will candidates ensure increased funding for medical research is among their top priorities? Will they remove barriers to private sector innovation? As part of our national voter education initiative, Campaign for...

medical research

A Weekly Advocacy Message from Mary Woolley: The Senate is busy and so are we

A Weekly Advocacy Message from Mary Woolley: Three ways to let the Senate know your views

Creating Collaborative Treatment Plans for Patients with Pediatric Rheumatic Diseases

Americans Say Candidates Running for National Office Should Prioritize Funding for Research

The Kidney Cancer Association Launches Campaigns to Raise Awareness

All of Us Research Program Seeks to Empower Patients, Healthcare Providers

Turning Scientific Discoveries into Health: NIH 101

Recommendations for the Future of NIH

A Weekly Advocacy Message From Mary Woolley: Making the lives of Americans Better, Safer and More Prosperous

Scientists Are Urging Candidates to Discuss Medical Progress

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