2019 National Genetics and Genomics Survey

12/13/2019

This online survey was conducted by Zogby Analytics on behalf of Research!America in December 2019, among 1,015 adults. The survey has a theoretical sampling error of +/- 3.1 percentage points.* Subsets of the data have a larger margin of error than the whole data set. The sample is weighted using complex weighting techniques to best represent the demographics of the population being surveyed. Weighted variables may include age, race, gender, region, party, education, and religion.

Questions	Also Appears in
Do you believe we are making enough progress in medical and health research in the U.S.?	2023Q4 , 2023 , 2022Q3 , 2020Q4 , 2017Q2 , 2014Q2
Please indicate if any of the following apply to you:
Human genetics is the study of DNA, how genes are passed down through generations of people, and how they influence a person's health and functioning. Have you heard about human genetics in the past year?
Have you ever looked for information about human genetics, from any sources?
The most recent time you looked for information about human genetics, where did you go first? (choose one)
Overall, how confident are you that you could get information about human genetics if you needed it?
How would you describe your feelings about human genetics research?
Please select from the following the top five words that best reflect your attitudes towards human genetics research:
Which of the following institutions should be involved in conducting human genetics research? Select all that apply.
Human genetics research progress depends on participation from patients and the public. Which of the following would motivate you to participate in human genetics research, such as contributing your genetic information to projects like the U.S. national 'All of Us' initiative or other large-scale studies? (choose all that apply)
What are the biggest barriers or concerns to your participation in human genetics research? (Choose all that apply)
Which of the following factors would be included in your own decision to participate in genetic research? (Choose all that apply)
Personalized or precision medicine involves testing genetic and other factors to help determine which medical treatments will work best for each patient. Have you heard of precision medicine?
Do you agree or disagree that genetic research is important to improving your family's health?
Do you agree or disagree that genetic research is important to improving our nation's health?
How important is it to increase federal funding to support genetic research?
For each of the following sources, please indicate how trustworthy the medical and health information they provide is:	2023Q4 , 2020Q4
Please indicate if you think the following possible outcomes of human genetics research will be positive or negative:
Please indicate whether you think the following statements about genetics and genomics are true or false:
Please indicate the extent to which you agree or disagree with the following statements on genetics and genomics:
Please indicate the extent to which you agree or disagree with each of the following statements on medical research:
Please indicate if you think the following aspects of precision medicine are positive or negative:
What would you say is the single most important health issue facing the nation?	2024Q1 , 2023Q4 , 2023 , 2022 , 2021 , 2020Q4 , 2018 , 2017Q2 , 2016Q2