Research!America

On June 17, Research!America hosted a Capitol Hill briefing on neglected tropical diseases in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF). Research!America also led a series of Hill meetings last week with influential congressional offices to discuss some of the successes of USAID’€™s NTD program and to highlight the need for continued investments. USAID’€™s NTD program ’€“ which was authorized by Congress in 2006 – has helped to deliver more than 580 million treatments to approximately 260 million people...
U.S. Capitol As July 4 th approaches, we have another opportunity to contact elected officials via social media during the Congressional recess (July 1 ’€“ 5) to drive home the message that medical innovation should be protected from further cuts. Each day we will highlight a specific theme that can be customized with your statistics and patient/researcher stories. For example, on Wednesday we’€™ll focus on the drug discovery pipeline because basic research fuels private sector innovation which translates into new diagnostics, devices and products to improve the health of all Americans. Follow us on Twitter @ResearchAmerica and use the hashtag #curesnotcuts to join in the national...
Dear Research Advocate: Setting our nation’€™s sights high, rather than watching Rome burn; that’€™s the advice embedded in a recent op-ed authored by John R. Seffrin, PhD (CEO of the American Cancer Society and Research!America Board Member) and Michael Caligiuri, MD (CEO of the Ohio State University Comprehensive Cancer Center – James Cancer Center Hospital and Solove Research Institute). The authors advocate establishing a national plan, one that puts political differences aside and focuses on combating deadly and tremendously costly disease. There is a compelling argument to be made that if our nation wants to sustain a balanced budget, it must deploy a disease moonshot. If our nation...
The TMJ Association, Ltd. (TMJA), a Research!America member, was founded in 1989 in Milwaukee, WI by two TMJ patients. The organization’€™s mission is to improve the quality of health care and lives of everyone affected by Temporomandibular Disorders (TMD), commonly called TMJ. TMD are a complex and poorly understood set of conditions characterized by pain in the jaw joint and surrounding tissues with limitation in jaw movements. TMD pain may range from mild discomfort to severe and intractable accompanied by jaw dysfunction necessitating a feeding tube for sustenance. For many sufferers, their ability to chew, swallow, make facial expressions, and even breathe is limited. It is estimated...
The United Health Foundation recently released their first-ever comprehensive report on the health of America’€™s senior population. According to a statement from the authors Reed Tuckson, MD and Rhonda Randall, DO , ’€œThe report provides a comprehensive analysis of senior population health rankings on both national and state levels, and it comes at a critical time. Americans are living longer but sicker lives, and America’€™s senior population is poised to grow 53 percent between 2015 and 2030.’€ This fascinating report ranks each state by the incidence of several factors, including obesity, physical inactivity, low-care nursing, and food insecurity. The United Health Foundation, a...
Dr. Wallace H. Coulter Coulter. Medical diagnostics. See a link? Coulter is one-half of Beckman Coulter, a Research!America member and a company that boasts nearly $6 billion in market capitalization . And that half of a multi-billion-dollar, multinational company began with research on paint for the U.S. Navy. Such unlikely beginnings are the reason that Wallace Coulter has been named the first recipient of the Golden Goose Award for 2013 . More winners will be named during the coming months. The press release announcing the award explains Coulter’€™s research: In his time away from working for various electronics companies in the 1940s, Coulter built a lab in his garage and earned a grant...
Today is Post-Traumatic Stress Disorder Screening Day, one of the key days in National PTSD Awareness Month. If you think you might be suffering from PTSD, the Department of Veterans Affairs’€™ National Center for PTSD is an excellent resource to consult. And that makes sense: PTSD is most commonly associated with the military. Troops returning from far-flung theaters, having experienced the uncensored horrors of war, are prime candidates to develop PTSD. It’€™s estimated that 1 in 5 veterans of the wars in Iraq and Afghanistan ’€” 300,000 in all ’€” have been diagnosed with PTSD. PTSD is hardly limited to the military. Victims of abuse or assault and people closely affected by serious...
Dear Research Advocate: Yesterday, I joined Diane Rehm and other guests on her nationally syndicated radio program to discuss how sequestration impacts “ordinary Americans.” I was struck by how deep and distressing the damage is, in so many sectors, including but not limited to our own. Yet somehow the pain is not acute enough to force action. What strikes me is how low our collective expectations have sunk when it comes to reinvigorating U.S. economic growth and prosperity. Our nation can do better; why don’€™t we maintain high expectations and hold our elected officials accountable for setting the policy stage to accomplish them? Policy makers should protect discretionary spending, make...
The genesis of the Parkinson’€™s Action Network goes back to 1987, four years before the organization’€™s founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson’€™s disease; she threw her might into advocating for people living with Parkinson’€™s. Four years later, PAN was born, and its successful advocacy continues today. The Parkinson’€™s Action Network (PAN) is a unique organization in the patient advocacy world. PAN represents the entire Parkinson’€™s community on funding and quality of life policy priorities for those living with the disease. PAN works with other national Parkinson’€™s organizations and is the only organization addressing...
A tenet of Research!America’€™s advocacy has always been to implore scientists to tell their stories ’€“ not their data. Stories connect with other people, i.e., non-scientists, in a way that data cannot. A hundred heartfelt words do more than 100 million data points. We know this because people, i.e., non-scientists, have told us. They have demonstrated it to us. Alan Alda’€™s improv classes at Stony Brook University turned scientists into storytellers. We’€™ve heard from Members of Congress that stories keep them engaged. And if that’€™s not enough, we have an in-person demonstration from part of the crew at the traveling show/podcast called The Story Collider . Ben Lillie, PhD, is the co...

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Funding research gives all of us a better chance of living a healthier life.
Pam Hirata, heart disease survivor