advocacy

Dear Research Advocate: Last week, I wrote about the international trade deficit our country faces. This week, I’€™d like to focus on the budget deficit. From 2003 to 2011, Medicare and Medicaid spending grew 74% while our economy only grew 35%. With that kind of differential, no government can balance its budget. We need research to address disabling and costly illnesses, but that won’t be enough in and of itself to bridge the gap. We also need tax and entitlement reform that preserves needed services, squeezes out waste and inefficiency (by the way, that’€™s why we must also fight to protect health economics research, health services research and other research that optimizes health care...
Current FOSEP leaders: Renee Agatsuma, Cyan James, Bish Paul, Abigail G. Schindler, PhD, Corey Snelson, PhD, Christopher Terai. (James and Schindler are the main authors) Founded by Melanie Roberts in 2004, the Seattle Forum on Science Ethics and Policy (FOSEP) brings distinguished speakers to campus, builds community science literacy, and trains future leaders in science policy and advocacy. While there can be a dearth of opportunities at the university level to educate scientists in policy, advocacy, and communication, FOSEP aims to explore the intersection of science and society and to educate its members to become future leaders and innovators. At FOSEP we provide unique leadership...
Current FOSEP leaders: Renee Agatsuma, Cyan James, Bish Paul, Abigail G. Schindler, PhD, Corey Snelson, PhD, Christopher Terai. (James and Schindler are the main authors) Founded by Melanie Roberts in 2004, the Seattle Forum on Science Ethics and Policy (FOSEP) brings distinguished speakers to campus, builds community science literacy, and trains future leaders in science policy and advocacy. While there can be a dearth of opportunities at the university level to educate scientists in policy, advocacy, and communication, FOSEP aims to explore the intersection of science and society and to educate its members to become future leaders and innovators. At FOSEP we provide unique leadership...
Dear Research Advocate: Myth #1: Congress doesn’t pay attention during the August recess. Not true! Many town hall meetings are planned. Since the debt ceiling and appropriations negotiations are coming up in September, the August recess is actually a very important time for advocacy. Use this month to drive the point home that medical research should not be subjected to budget cuts by attending a town hall meeting, meeting with district staff and participating in our social media campaign, #curesnotcuts. Click here for sample messages, or draw from a recent op-ed penned by The Honorable John Edward Porter, Research!America chair. The op-ed ran in several McClatchy-Tribune newspapers across...
Dear Research Advocate: Myth #1: Congress doesn’t pay attention during the August recess. Not true! Many town hall meetings are planned. Since the debt ceiling and appropriations negotiations are coming up in September, the August recess is actually a very important time for advocacy. Use this month to drive the point home that medical research should not be subjected to budget cuts by attending a town hall meeting, meeting with district staff and participating in our social media campaign, #curesnotcuts. Click here for sample messages, or draw from a recent op-ed penned by The Honorable John Edward Porter, Research!America chair. The op-ed ran in several McClatchy-Tribune newspapers across...
On June 17, Research!America hosted a Capitol Hill briefing on neglected tropical diseases in partnership with Drugs for Neglected Diseases initiative (DNDi), Global Health Technologies Coalition (GHTC), The American Society for Tropical Medicine and Hygiene, and Doctors Without Borders/Médecins Sans Frontières (MSF). Research!America also led a series of Hill meetings last week with influential congressional offices to discuss some of the successes of USAID’€™s NTD program and to highlight the need for continued investments. USAID’€™s NTD program ’€“ which was authorized by Congress in 2006 – has helped to deliver more than 580 million treatments to approximately 260 million people...
Dear Research Advocate: Setting our nation’€™s sights high, rather than watching Rome burn; that’€™s the advice embedded in a recent op-ed authored by John R. Seffrin, PhD (CEO of the American Cancer Society and Research!America Board Member) and Michael Caligiuri, MD (CEO of the Ohio State University Comprehensive Cancer Center – James Cancer Center Hospital and Solove Research Institute). The authors advocate establishing a national plan, one that puts political differences aside and focuses on combating deadly and tremendously costly disease. There is a compelling argument to be made that if our nation wants to sustain a balanced budget, it must deploy a disease moonshot. If our nation...
The TMJ Association, Ltd. (TMJA), a Research!America member, was founded in 1989 in Milwaukee, WI by two TMJ patients. The organization’€™s mission is to improve the quality of health care and lives of everyone affected by Temporomandibular Disorders (TMD), commonly called TMJ. TMD are a complex and poorly understood set of conditions characterized by pain in the jaw joint and surrounding tissues with limitation in jaw movements. TMD pain may range from mild discomfort to severe and intractable accompanied by jaw dysfunction necessitating a feeding tube for sustenance. For many sufferers, their ability to chew, swallow, make facial expressions, and even breathe is limited. It is estimated...
The genesis of the Parkinson’€™s Action Network goes back to 1987, four years before the organization’€™s founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson’€™s disease; she threw her might into advocating for people living with Parkinson’€™s. Four years later, PAN was born, and its successful advocacy continues today. The Parkinson’€™s Action Network (PAN) is a unique organization in the patient advocacy world. PAN represents the entire Parkinson’€™s community on funding and quality of life policy priorities for those living with the disease. PAN works with other national Parkinson’€™s organizations and is the only organization addressing...
Dear Research Advocate: According to our new national public opinion poll on clinical trials and related topics, most Americans are willing to share their personal health data to advance research, and 72% would be willing to participate in a clinical trial if recommended by their doctor. This complements what we know from other polling, i.e. that Americans want research to proceed at a pace of scientific opportunity. Yet we continue to lose ground in the gridlocked political environment, which, by its inaction, is dashing the hopes of patients and families anxious for new therapies and cures. What’€™s wrong with this picture? It isn’€™t as though research hasn’€™t yielded both societal and...

Pages

Sidebar Quote

You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter