Events

Name: Alliance Discussion on FDA’s Rare Disease Innovation Hub
Start: 2026-04-30T12:00:00-04:00
End: 2026-04-30T13:00:00-04:00

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April 2026
Alliance Member-Only Meeting with Key Appropriations Staffers, Part 2

April 23 @ 11:30 am - 12:15 pm

Join us for a special Zoom meeting on Thursday, April 23 from 11:30 a.m. to 12:15 p.m. ET  featuring Meghan Mott and Stephen Steigleder, Professional Staff Members for the Minority on the Senate and House Labor-HHS Subcommittees, respectively. Meghan and Stephen will provide an update on the FY27 appropriations process, with a particular focus on the NIH.  This off-the-record discussion is not open to […]
Alliance Discussion on FDA’s Rare Disease Innovation Hub

April 30 @ 12:00 pm - 1:00 pm

We are thrilled to host Amy Comstock Rick, Associate Director for Rare Disease Strategy at the Center for Drug Evaluation and Research (CDER) at FDA and Director of Strategic Coalitions for the Rare Disease Innovation Hub, on Thursday, April 30 at 12:00 p.m. ET on Zoom for a discussion on FDA’s work to advance treatments for people living with rare diseases. The Hub […]