Alliance Discussion: Sepsis: Gaining Ground Against a Lethal Threat

Sepsis, a life-threatening emergency that happens when your body’s response to an infection damages vital organs, affects over 1.7 million people and takes the lives of over 6,800 children in the U.S. each year. On Wednesday, May 29 at noon E.T. Thomas Heymann, President & CEO of Sepsis Alliance, and Dr. Mallory Perry-Eaddy, Assistant Professor at the University […]

Alliance Discussion with Dr. Megan Frisk, director for International Affairs at ARPA-H

Since its establishment in 2022, the Advanced Research Projects Agency for Health (ARPA-H) has been working to accelerate better health outcomes for everyone by supporting “big bets” in the health arena: time-limited, high-risk, high-reward projects aimed at achieving major breakthroughs in health.  Megan Frisk, PhD, director for International Affairs at ARPA-H, joined us for a […]

Alliance Discussion: Finding New Hope in Existing Drugs: a conversation with ARPA-H Project Awardee Dr. David Fajgenbaum, Co-Founder & President of Every Cure

Globally, there are millions of people diagnosed with diseases that have no available or approved treatments. Drug repurposing or using an approved drug as a new treatment for another disease has been an effective, but underutilized tool in therapeutic discovery. In February 2024, Every Cure received an ARPA-H Project Award to develop an AI-powered platform, called ML/AI-enabled […]

Alliance Discussion with Dr. Bruce Tromberg, Director of the National Institute of Biomedical Imaging and Bioengineering (NIBIB)

Dr. Bruce Tromberg, Director of the National Institute of Biomedical Imaging and Bioengineering (NIBIB) at the National Institutes of Health (NIH),  joined us to discuss the critical role the Institute plays in advancing early detection, accurate diagnosis, and effective treatment of a host of deadly and debilitating health threats.  What are the greatest hopes and […]

Alliance Members Only NIH Meeting

On Friday, June 14, Representative Cathy McMorris Rodgers (R-WA), who chairs the House Energy & Commerce Committee, released a report and framework recommending significant changes in the structure and operations of the National Institutes of Health (NIH).  Her press release on the framework links to a commentary in STAT she and Labor-HHS Appropriations Chair Robert Aderholt (R-AL) authored that sets the […]

NIH Meeting 2.0: A Research!America Alliance Members-only Zoom Meeting

We hosted a second alliance member-only Zoom meeting focused on the NIH Reform Framework for Discussion Representative Cathy McMorris Rodgers (R-WA) released on July 14. Featuring Grace Graham and Molly (Brimmer) Lolli with the Majority staff of the House Energy and Commerce Committee and Kathryn Salmon with the Majority staff of the House Labor, Health and Human Services, […]

Alliance Discussion with the CDC National Center for Emerging and Zoonotic Infectious Diseases (NCEZID)

Earlier this year, record-breaking outbreaks of dengue fever drew significant attention worldwide, including the U.S. territory of Puerto Rico.  Though once seen as a disease that only afflicted people in developing countries, dengue and other tropical diseases are an increasing global and public health threat. On Tuesday, July 9th we were joined by Dr. David […]

Alliance Discussion with Quinn Ritchie, Legislative Director for Rep. Mike Kelly

Clinical trials are essential to making cutting-edge research available to all Americans, but participating in these trials can be a financial burden for participants and their families. Earlier this year, Representatives Mike Kelly (R-PA-16) and Chrissy Houlahan (D-PA-6) introduced H.R. 7418, the Harley Jacobsen Clinical Trial Participant Income Exemption Act. The bipartisan bill would exempt […]

Members Only Meeting on ARPA-H with Diane Sidebottom and Benjamin Bryant

Partnering with ARPA-H What are the nuts and bolts of partnering with ARPA-H? Diane Sidebottom, the Director of the Business Innovation Division at ARPA-H, and Benjamin Bryant, the Division’s Deputy Director, have agreed to join us to provide a run-down on contracting with the agency and any questions you may have about partnering. If you’re interested in being […]

Reflecting Reality: How to Improve Participant Diversity in Neuroscience Research 

Ancestry-associated genes have an important impact on mental health, yet only 5% of neuroscience research subjects are from underrepresented populations. This limits the application of research into a variety of diseases such as Alzheimer’s and Parkinson’s Disease. On Friday, July 19 at 11:00 a.m. ET, the African Ancestry Neuroscience Research Institute joined us to discuss […]

Alliance Members-only: 21st Century Cures 2.1 Discussion with Emily Mace, Deputy Chief of Staff & Counsel for Rep. Larry Bucshon and David Steury, Health Policy Director for Rep. Diana DeGette 

On June 6, 2024,  House Energy & Commerce Committee Members Larry Bucshon (R-LA), Vice Chair of the Health Subcommittee, and Diana DeGette (D-CO), Ranking Member of the Energy, Climate, and Grid Security Subcommittee, released a request for input on a new iteration of the landmark, bipartisan 21st Century Cures Act. With the August 2nd due […]

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