Advocacy Awards

Dear Research Advocate: Earlier this week, the House passed an inadequate proposal for $622.1 million in emergency Zika funding, falling far short of the bipartisan Senate proposal of $1.1 billion passed this week, not to mention the President’s request of $1.9 billion. Appropriations subcommittee Chairman Cole (R-OK-04) has stated that subsequent Zika funding will come in the next appropriations cycle, but public health experts tell us we cannot wait. (This is especially true since the pattern of the last many years is for appropriations to go undetermined until almost calendar year end.) Summer months are approaching and half the continental U.S. is home to potential disease-carrying...
Dear Research Advocate: The CDC has concluded that a causal relationship exists between the Zika virus and microcephaly. Earlier this week, Congress passed a law providing incentives for private sector development of Zika vaccines and treatments. But responding to threats like Zika is a resource-intensive, multi-pronged process. We are working with the March of Dimes and other partners to fight for emergency funding. Interested in joining this effort? Let me know! The Senate Appropriations Committee has parsed the overall FY17 discretionary budget into “302(b)” allocations for its various subcommittees. Given that the topline numbers are virtually flat, it is not particularly surprising...
Dear Research Advocate: Vice President Joe Biden continued the drumbeat for the Cancer Moonshot with a visit to Research!America member Johns Hopkins University on Tuesday. He spoke about the critical importance of the private sector in the discovery, development, delivery ecosystem. Indeed, from public-private partnerships to philanthropic donations, the private sector is an essential partner in the fight against deadly and debilitating diseases. Demonstrating both this point and his personal commitment to research, former New York Mayor --and Research!America Advocacy Award recipient-- Michael Bloomberg joined Sidney Kimmel and others in announcing a $125 million donation to create the...
2016 Research!America Advocacy Awards Dinner “We need to preserve and promote our science--in all of its forms-- because it represents the best of what we have been-- and must continue to be--as a nation,” according to Nobel Laureate Harold Varmus, M.D ., Lewis Thomas University professor, Weill Cornell Medicine, in remarks at Research!America’s 20 th Annual Advocacy Awards Dinner . Dr. Varmus received the Legacy Award at the event held March 16 at the Andrew W. Mellon Auditorium in Washington, D.C. He joined other honorees for the program which celebrated exemplary leaders in medical and health research advocacy whose advocacy efforts have been notably effective in advancing our nation’s...
Dear Research Advocate: Three outstanding speakers addressed Research!America’s annual meeting of members yesterday. Newly confirmed FDA Commissioner Dr. Robert Califf kicked off the meeting, outlining his priorities for the agency. Having known Dr. Califf for some time, I wasn’t at all surprised to hear how determined he is to ensuring FDA engages the patient perspective as it works to improve policies and processes. For example, he underscored how important it is to calibrate risk/benefit calculations to take into account the seriousness of an illness and the availability of treatment options...in other words, how important it is to think like a patient, not for a patient. Bravo! Senator...
The March issue of The Research Advocate is online . Highlights from this month include: Research!America will hold its 27th Annual Meeting of Members at the Willard Intercontinental Hotel, 12:00pm – 1:30pm. The meeting will feature guest speakers senior Senator Amy Klobuchar (D-MN); Food and Drug Administration commissioner Robert Califf, M.D. ; and Lorri Carey , ALS Association patient advocate. Research conducted at Louisiana institutions benefits not only those in the state but also people across the country, said honorary co-host Senator Bill Cassidy, M.D., (R-LA) during his opening remarks at the Louisiana Research Summit held on February 16 at the University Medical Center in New...
From a challenge that raised millions and created buzz worldwide to groundbreaking research of a Nobel laureate whose contributions to cancer research are far-reaching, Research!America’s 2016 Advocacy Award honorees are individuals and organizations who are trailblazers in advocacy for medical and health research. The event will be held on Wednesday, March 16, 2016 at the Andrew W. Mellon Auditorium in Washington, D.C. Dr. Harold Varmus, a Lewis Thomas University professor at the Meyer Cancer Center of Weill Cornell Medicine, will be honored with the Legacy Award. Dr. Varmus is the co-recipient of the Nobel Prize in Physiology or Medicine for studies of the genetic basis of cancer and is a...
Dear Research Advocate: You may have seen this week’s 60 Minutes segment on an experimental therapy at Duke University targeting glioblastoma, an aggressive brain cancer. Like the PBS documentary based on Siddhartha Mukherjee’s "The Emperor of All Maladies," the 60 Minutes report conveys the gravity of the cancer threat - the unimaginable emotional and physical toll it takes - and the power of science to fight back. The media gets a bad rap - sometimes deserved - for sensationalizing, trivializing, and generally making mincemeat of good science. The negative consequences can be enormous, leading to science skepticism that bleeds into counterproductive public policy. But just as often the...
Dear Research Advocate: The 2014 Nobel Laureates will be announced next week. I hope you will consider amplifying the news via social media, op-eds and letters to the editor. The Nobel prize is so iconic that it provides an entrée to the broader public, one that can be used to connect the dots between the process of scientific discovery, the power of ingenuity, and the role of science in human progress. And if a winner has been funded by a U.S. science agency or company, all the better from an advocacy perspective! In the years ahead, will the United States be home to more Nobel Laureates in the sciences, or will those honors go to scientists in countries that place a greater emphasis on...
Research!America To Honor Leaders in Medical and Health Research Advocacy Robin Roberts, Michael Milken, Dr. Kenneth Olden, David Van Andel, Dr. George Vande Woude and the Society for Neuroscience to Receive 2015 Research!America Advocacy Awards ALEXANDRIA, Va.’€”September 29, 2014’€” Research!America’€™s 19th annual Advocacy Awards will honor distinguished research advocates who are trailblazers in advancing medical progress to improve the health and economic security of our nation. The event will take place on Wednesday, March 11, 2015, at the Andrew W. Mellon Auditorium in Washington, DC. The 2015 Advocacy Award winners are ABC’€™s ’€œGood Morning America’€ anchor Robin Roberts; Michael...

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