Advocacy Awards

Excerpt of a blog post by Dr. Tom Insel, Director of the National Institute of Mental Health. (From NIMH blog) The Research!America awards dinner is like a lot of DC galas, complete with members of Congress, celebrities, and speeches to honor those who have contributed to a cause. For Research!America, the cause is biomedical research and this year, as in each of the past 25 years, there were honors bestowed on advocates for cancer and rare diseases. Kathy Giusti, diagnosed with multiple myeloma in 1998, spoke passionately about the lack of research on this blood cancer and her singular fight to create a registry and clinical trials, leading to new treatments that have extended her own life...
On March 12, Research!America honored extraordinary leaders in medical and health research advocacy during the 2014 Annual Advocacy Awards at the Andrew W. Mellon Auditorium in Washington, DC. We extend our congratulations to the honorees: Reps. Frank Wolf (R-VA) and Chaka Fattah (D-PA); actress Glenn Close and her family for their work to end the stigmas and misunderstandings surrounding mental illness; Leroy Hood, MD, PhD, president of the Institute for Systems Biology; Kathy Giusti, founder and CEO of the Multiple Myeloma Research Foundation (MMRF); Reed Tuckson, MD, managing director of Tuckson Health Connections; and The Progeria Research Foundation (PRF). While much has been done to...
Excerpt of an op-ed by David Satcher, MD, PhD, honorary chairman of the African American Network Against Alzheimer’€™s, former U.S. surgeon general and Research!America’s 2007 Raymond and Beverly Sackler Award for Sustained National Leadership award winner, published in The Washington Post . Every February our society measures its progress in the march toward equality as part of Black History Month. But seldom do we discuss inequality in health, an injustice that continues to plague African Americans. A whole host of health disparities remains unaddressed, including Alz­heimer’€™s ’€” a disease that African Americans are two to three times more likely to develop than non-Hispanic whites...
Dear Research Advocate, Ironically, the government is closed down today. But that’€™s due to a major snowstorm, not because of failure to agree on increasing the debt limit! Agreeing to increase the debt limit is an encouraging sign that this Congress, weighed down as it is by ideological and political differences, and with record- low approval rankings from the public, can get its job done! Our job is to be sure research is a top priority in this election year ’€” spoken of with conviction by all candidates and by the media and others who influence them. Standing tall among Members of Congress who champion science are the Chair and Ranking Member of the House Appropriations’€™ Commerce,...
Dear Research Advocate: Just in time for the World Series, a national campaign to make evidence-based government spending decisions has been announced. Moneyball for Government , a project of Results for America, advocates prioritizing limited taxpayer dollars by investing strategically in what works, eschewing ’€œgut level’€ instinct for metrics-driven decision-making. Stakeholders in medical and health research sometimes have difficulty measuring or agreeing on metrics that matter; it’€™s time to work through this challenge so that when stakeholders talk about research accountability ’€” in the current budget conversations or in any context ’€” we can speak with one metric-driven voice...
Glenn Close, Dr. Leroy Hood, Dr. Reed Tuckson, Kathy Giusti and the Progeria Research Foundation to Receive 2014 Research!America Advocacy Awards ALEXANDRIA, Va.-October 22, 2013- Research!America’s 18 th annual Advocacy Awards will honor extraordinary advocates of medical and health research who are distinguished in their commitment to advancing medicine and health. The event will take place on Wednesday, March 12, 2014, at the Andrew W. Mellon Auditorium in Washington, DC, as a part of Research!America’s 25 th anniversary commemoration. The 2014 Advocacy Award winners are actress Glenn Close and her family; Leroy Hood, MD, PhD, president, Institute for Systems Biology; Kathy Guisti,...
Glenn Close, Dr. Leroy Hood, Dr. Reed Tuckson, Kathy Giusti and the Progeria Research Foundation to Receive 2014 Research!America Advocacy Awards ALEXANDRIA, Va.-October 22, 2013- Research!America’s 18 th annual Advocacy Awards will honor extraordinary advocates of medical and health research who are distinguished in their commitment to advancing medicine and health. The event will take place on Wednesday, March 12, 2014, at the Andrew W. Mellon Auditorium in Washington, DC, as a part of Research!America’s 25 th anniversary commemoration. The 2014 Advocacy Award winners are actress Glenn Close and her family; Leroy Hood, MD, PhD, president, Institute for Systems Biology; Kathy Guisti,...
Dear Research Advocate, President Obama spoke to the National Academies of Science on Monday. I commend his remarks to you. He charged the members of the Academy, and by extension the science community writ large, to engage at ’€œthe center and the heart of our public debate.’€ He said that IF scientists do so, the nation will be assured of continued prominence. IF is a tall order — it makes most scientists very uncomfortable, but it is essential that we get out of our comfort zone right now. The president didn’€™t pound his fist on the podium in stressing this, so I will. The science community simply cannot step away from the public and political fray right now; not if we want to see the...
Every year, Research!America honors outstanding biomedical and health research advocates from a variety of fields. We are currently accepting nominations for our 25 th Anniversary Advocacy Awards. Through these awards, Research!America recognizes individuals and organizations whose leadership efforts have been notably effective in advancing our nation’s commitment to research. The nomination process is simple and the deadline is May 15 . There are multiple categories, including individual and organization awards. Past winners include CNN Chief Medical Correspondent Sanjay Gupta , MD, patient advocate John Crowley , Chair and CEO, Amicus Therapeutics, Bob Woodruff , the March of Dimes and...
Research!America extends our congratulations again to all of our 2013 Advocacy Award winners. The dinner was a wonderful opportunity to thank our supporters and advocates for all of their hard work and recognize leaders in the research and advocacy communities. This year’€™s Advocacy Award winners were Sen. Richard Burr (R-NC); Sen. Bob Casey (D-PA); John F. Crowley, patient advocate and chairman and CEO of Amicus Therapeutics, Inc.; Mark Rosenberg, MD, president and CEO of The Task Force for Global Health; John Mendelsohn, MD, director of the Khalifa Institute for Personalized Cancer Therapy and former president at The University of Texas MD Anderson Cancer Center; Diane Rehm, host of ’€œ...

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