Advocacy Awards

Dear Research Advocate: I am especially pleased to report that the House passed the Labor-H/Defense FY19 appropriations conference report yesterday, by a vote of 361-61. The President has said he will sign the bill, thus avoiding a partial government shutdown with its myriad negative consequences (including the toll on medical and public health progress). Please do as we have and say thank you to Congressional leadership for passing this bill in timely fashion, with funding that supports putting research to work to find the solutions to what ails us. Of particular note, the bill includes a $2 billion increase for NIH, as well as increases for other federal health agencies under HHS auspices...
Dear Research Advocate: The Senate approved a four-bill minibus package including appropriations under the jurisdiction of the Interior-Environment, Financial Services, Agriculture (which includes FDA) and Transportation-HUD Subcommittees yesterday, and will now likely take up a combined Labor-H/Defense appropriations bill (inclusive of NIH, CDC, AHRQ, the Department of Defense CDMRP and other important research funding). Research!America sent a letter to Appropriations leaders today reinforcing their commendable efforts to wrap up FY19 appropriations before the 9/30 deadline. The stakes here are high: the alternative scenarios -- either flat funding under a continuing resolution or a...
Dear Research Advocate: In United for Medical Research’s terrific Amazing Things Podcast series, chairman of the House Labor-HHS Subcommittee, Tom Cole (R-OK) talks about what investments in research mean for the health, well-being and prosperity of America and Americans. Listen in - Chairman Cole can teach us all a thing or two about high impact advocacy! It is important for stakeholders in research to take time to demonstrate the utility of research and innovation investments, speaking out to current and future Congressional champions on both sides of the aisle. With that aim in mind, Research!America has expanded our bipartisan candidate engagement initiative for the midterm elections,...
Dear Research Advocate: Tomorrow is the final day to nominate outstanding leaders in medical, health and other scientific research for a Research!America 2019 Advocacy Award. Learn more about the 2019 awards and submit nominations here . If you have someone in mind and could use backup to help fill in the submission details, let us help! Email Barbara at BLove@researchamerica.org . Last week, the president unveiled his plan to address drug pricing, the American Patients First plan. In addition to the release, the Department of Health and Human Services (HHS) issued a request for information (RFI) that established a 60-day window for public comment. Secretary Azar’s written statement on the...
“We are on the cusp of a major breakthrough in medical progress, this is not a time to let up, it’s a time to redouble our efforts,” said Joe Biden , 47th Vice President of the United States, in his remarks at Research!America’s 21st Advocacy Awards Dinner on March 15. “We can make sure many more chronic diseases don’t cost you your life, but only if we break down barriers. I see the day a patient is given the right therapy the first time when they are diagnosed. I see the day when prevention is more effective, and where care is personalized and more effective with less side effects.” Former Vice President Biden received the Gordon and Llura Gund Leadership Award for his commitment to...
This article is the last in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . An estimated 10 million Americans live with lymphedema—that is more than those living with multiple sclerosis, muscular dystrophy, ALS (Lou Gherig’s disease), AIDS and Parkinson’s disease combined. Yet, despite its prevalence, lymphedema (LE) does not receive the wide-spread attention and federal support like other diseases. Kathy Bates, award winning actress and Lymphatic Education & Research Network (LE&RN) spokesperson, is raising awareness for lymphedema. “You...
This article is the sixth in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Nearly 1.7 million Americans were diagnosed with cancer last year. National expenditures for care are estimated to rise to $156 billion in 2020. Cancer is the second leading cause of death in the United States, claiming more than half-a-million lives each year. Joseph R. Biden, Jr., 47 th Vice President of the United States, is leading efforts to accelerate the pace of cancer research through collaboration and innovative partnerships, and has been hailed as the driving...
Dear Research Advocate, House Republican Leadership released an ACA replacement bill this week (section summaries available from the Energy & Commerce and Ways & Means committees). The bill has been creating waves, concerning many in the public health and health care fields. The cost and coverage impact have yet to be estimated, but we do know that the bill repeals the Prevention and Public Health Fund (PPHF), which accounts for approximately 12% of CDC’s budget. House Labor-H Chairman Cole (R-OK) discussed CDC’s crucial role in a recent STAT article. Use this editable message to make the case for CDC and PPHF. Trust for America’s Health is a terrific resource for more background...
This article is the fifth in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Senator Lamar Alexander (R-TN) will be receiving Research!America’s Edwin C. Whitehead Award for Medical Research Advocacy , which honors exemplary leaders, particularly those in public office, who have shown a long-standing commitment to advancing health research as a national priority. Alexander has shown a strong commitment to improving the lives of Americans and, as chairman of the Senate Health, Education, Labor, and Pensions (HELP) Committee, he championed the passage...
This article is the fourth in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Nobel laureate Phillip A. Sharp, Ph.D., is Research!America’s recipient of the Raymond and Beverly Sackler Award for Sustained National Leadership , which honors medical and health research advocacy leaders who have been instrumental in developing and implementing a sustained advocacy program for medical and health research. Prof. Sharp is an Institute Professor at the Massachusetts Institute of Technology and serves as Chair of Stand Up To Cancer’s (SU2C) Scientific...

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Sidebar Quote

If concerted, long-term investments in research are not made, America will lose an entire generation of young scientists.
Brenda Canine, PhD; McLaughlin Research Institute, Montana