The Solve ME/CFS Initiative and #MEAction will be hosting a congressional briefing on May 18, The Invisible Health Crisis: Me/CFS, to discuss the disease and the desperate need for federal funding for research. Panelists will include Jennifer Brea, award-winning filmmaker, TED fellow and co-founder of #MEAction; Carol Head, MBA, president and CEO of the Solve ME/CFS Initiative; and Zaher Nahle, Ph.D., chief scientific officer and VP of research of the Solve ME/CFS Initiative.
Despite an estimated 2.5 million Americans who suffer with this devastating, chronic illness, ME/CFS remains in the bottom 4% of diseases funded by government research. ME/CFS leaves up to 89% of patients disabled, costing the U.S. economy between $17-24 billion annually. At this time, there is no FDA-approved treatment and no cure.
As part of a national campaign, 55 patients and their loved ones will travel from 24 states, territories, and districts to visit Capitol Hill during ME/CFS Awareness week in May to meet with congressional staff. These advocates will join with thousands of others, too sick to travel, participating in the effort online and by phone.
To learn more and attend an awareness event near you, click here.