The Senate’s companion legislation to the House 21st Century Cures Act is capturing the attention of research advocates across the nation. Many notable individuals and organizations joined the #CuresNOW Day of Action on June 7 organized by Research!America and EveryLife Foundation for Rare Diseases urging Congress to move the bill forward.
Research!America engaged members, policymakers and the public using the advocacy tool, Thunderclap. A virtual flash-mob, Thunderclap sends out a prewritten message on social media on the same day at the same time for everyone signed onto our campaign in the hopes of amplifying the message. The #CuresNOW Day of Action Thunderclap attracted over 170 individuals and reached a total of 302,184 profiles on social media. The Thunderclap’s message directed individuals towards Research!America’s #CuresNOW Day of Action advocacy platform, which allowed individuals to message, call and tweet their members of Congress. Through our platform, nearly 400 advocates sent over 1,100 emails!
Among those who joined the Day of Action were the House Energy and Commerce Committee, National Organization for Rare Diseases, 21st Century Cures authors Representatives Diana DeGette (D-CO-01) and Fred Upton (R-MI-06), American Association for Cancer Research, and Friends of Cancer Research. We must never forget the power of advocacy and the importance that we as a community of patients, researchers, caregivers, and industry members, must make sure our message is heard. Time is running out. Patients need #CuresNOW!