Member Spotlight Archive

Founded:
2005
Mission:
Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients, push for changes in policy that will increase and improve research and empower survivors and those touched by cancer to raise their voices against the status quo.
Since its beginning Fight Colorectal Cancer-formally The Colorectal Cancer Coalition (C3)-in 2005, advocacy has been the key component of its mission. When founder and chair Nancy Roach established the organization, it was because she saw an unfilled need for advocacy for colorectal cancer. And that advocacy is certainly needed; according to the American Cancer Society, colorectal cancer is the third most common form of cancer.
Founded:
1889
Mission:
Is to serve as New Mexico's flagship institution of higher learning through demonstrated and growing excellence in teaching, research, patient care, and community service.
By almost 23 years, the University of New Mexico (UNM) predates statehood: The school was founded in 1889 by an act of the Territory of New Mexico. By the mid-20th century, UNM was well established in the medical sciences; in 1994, the school opened its Health Sciences Center (HSC). Today, the HSC features a designated cancer center and 15 academic programs, including medicine, nursing and pharmacy.
Founded:
1997
In 1997, a year after the gene that causes Friedreich's ataxia was identified, Ron and Raychel Bartek received the diagnosis of their son, Keith, and discovered that there was no treatment for the disease and no group dedicated to finding one. So they started Friedreich's Ataxia Research Alliance (FARA). Since then, FARA alone has funded more than $20 million in research on the disease and helped secure a similar amount from co-funding organizations.
Founded:
1999
When the Pancreatic Cancer Action Network was founded in 1999, the 5-year relative survival rate was 5.3%, according to National Cancer Institute statistics. In the intervening years, the survival rate has remained stubbornly low. What is different is awareness: Today, more research is being conducted by more scientists, and the pancreatic cancer advocacy community has never been bigger. So too for Manhattan Beach, CA-based Pancreatic Cancer Action Network, which hired its first employee in 2000 and will soon hire its 100th.
Founded:
2002
Founded in 2002, the Association of Clinical Research Organizations-ACRO-began with five institutional members and currently has eight, all of which are in the private sector; those eight companies are far and away the giants of the industry. Though academic and nonprofit organizations are not prohibited from becoming ACRO members, ACRO is focused on the private sector.
Founded:
1876
From the beginning, the American Chemical Society has had a tie to medicine: It was founded in 1876 by 35 chemists at the College of Pharmacy of the City of New York. Chemistry in the pursuit of health remains a focus for ACS and its membership-now more than 163,000. The organization employs nearly 2,000 people; most work to produce the organization's more than 40 peer-reviewed journals and multiple databases that are indispensable to scientists worldwide.
Founded:
1974
Since 1974, AdvaMed-short for Advanced Medical Technology Association-has represented the medical technology sector. Today, the organization has more than 300 members of all sizes, representing medical devices, diagnostic products and health information systems.
Founded:
1991
The genesis of the Parkinson's Action Network (PAN) goes back to 1987, four years before the organization's founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson's disease; she threw her might into advocating for people living with Parkinson's. Four years later, PAN was born, and its advocacy continues today.
Founded:
1976
In 1976, Ken Stuart, PhD, opened the Issaquah Group for Health and Environmental Research, which was set up to foster the best and brightest researchers who were working to combat trypanosomes and related parasitic diseases. Today, the organization is known as Seattle BioMed, and it employs 15 faculty members and more than 330 workers in all.
Founded:
1969
From its original 121 member institutions when it was founded in 1969, American Association of Colleges of Nursing (AACN) has grown to more than 700 member institutions in all 50 states, DC and Puerto Rico. Besides advocacy, AACN is a resource to its members in a number of other ways: sponsoring an autonomous accreditation unit, developing curriculum standards and warehousing statistics about nursing schools and students across the country.

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Media Contacts

Robert Shalett
Director of Communications 
571-482-2737

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient