Member Spotlight Archive

Founded:
1869
Mission:
Provide the highest quality health care, be the leading source of research and discovery, educate the next generation of leaders in child health and enhance the health and well-being of the children and families in our local community.
Boston Children’s Hospital (BCH) invests heavily in research because science saves lives. They are focused on accelerating new treatments for devastating diseases as our discoveries translate from the laboratory bench to the patient’s bedside, where they have been improving the health of children and adults since 1869. 
Founded:
1948
Mission:
The Arthritis Foundation is boldly pursuing a cure for America’s #1 cause of disability, while championing the fight against arthritis with life-changing resources, science, advocacy and community connections.
Leading the fight for the arthritis community, the Arthritis Foundation helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections. The organization’s goal is to chart a winning course, guiding families in developing personalized plans for living a full life – and making each day another stride towards a cure.
Founded:
2008
Mission:
At Horizon, our mission is simple and powerful; to improve people’s lives. This mission not only drives what we do, in terms of bringing innovative therapies to market for those impacted by rare diseases, rheumatic diseases and other conditions, it also shapes who we are.
Horizon Pharma focuses primarily on the research, development and commercialization of medicines that treat rare diseases, which are diseases that impact fewer than 200,000 people in the United States. Because so few individuals are affected by a single rare disease, working to better understand the nature of the specific disease as well as developing appropriate biomarkers, diagnostics and treatments is often very challenging and requires a network of academic, government and private physicians and scientists to work together al
Founded:
1988
Mission:
Improve health through informatics education, science and practice.
The American Medical Informatics Association (AMIA) is the professional home for more than 5,500 informatics professionals, representing front-line clinicians, researchers, educators, and public health experts who bring meaning to data, manage information and generate new knowledge across the health and health care enterprise. Over the last 35 years, the use of informatics has grown exponentially to improve health and to make better health care decisions.
Founded:
1970
Mission:
To cure headache and end its pain and suffering.
The National Headache Foundation (NHF) is a 501 c-3 non-profit foundation which seeks to improve the lives of individuals with migraine and other severe headache disorders through education, research, and advocacy. The NHF was established in 1970 by one of the world’s preeminent headache clinicians, Dr. Seymour Diamond, and others who recognized the need for a patient organization in headache. Since its inception, the NHF has consistently distilled and amplified the voice of the patient in all matters related to headache care, research, and understanding. 
Founded:
1899
Texas State University is a doctoral-granting, student-centered institution dedicated to excellence and innovation in teaching, research, including creative expression, and service. The university strives to create new knowledge, to embrace a diversity of people and ideas, to foster cultural and economic development, and to prepare its graduates to participate fully and freely as citizens of Texas, the nation, and the world.
Founded:
1978
Mission:
To provide leadership on rural health issues through advocacy, communications, education and research.
The National Rural Health Association (NRHA) is a national nonprofit membership organization with more than 21,000 members. The association’s mission is to provide leadership on rural health issues through research, advocacy, communications and education. NRHA membership consists of a diverse collection of individuals and organizations, all of whom share the common bond of an interest in rural health. 
Founded:
1979
Mission:
To eradicate mental illnesses and to improve the quality of life of all who are affected by these diseases.
The National Alliance on Mental Illness (NAMI) is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. What started as a small group of families gathered around a kitchen table in 1979 has blossomed into the nation's leading voice on mental health.
Founded:
2010
Mission:
PCORI helps people make informed health care decisions, and improves healthcare delivery and outcomes, by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader health care community.
The Patient-Centered Outcomes Research Institute (PCORI) is a private nonprofit organization authorized by Congress to fund research that helps people make informed healthcare decisions and improves healthcare delivery and outcomes. It does so by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community.
Founded:
1928
Mission:
Delivering value to patients.
As a global biopharmaceutical research company, UCB is committed to making an impact on the lives of patients and those who care for them, particularly in the areas of neurology, immunology, and bone. UCB is inspired by patients and driven by science. At UCB, everything starts with a simple question: “how will this deliver value to patients living with severe diseases?” The world’s fifth largest biopharmaceutical company, UCB has two sites in the U.S. – a U.S.

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Media Contacts

Suzanne Ffolkes
VP of Communications
571-482-2710

Anna Briseño
Director of Communications 
571-482-2737

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient