Location: Bethesda, MD
Mission: Improve health through informatics education, science and practice.
The American Medical Informatics Association (AMIA) is the professional home for more than 5,500 informatics professionals, representing front-line clinicians, researchers, educators, and public health experts who bring meaning to data, manage information and generate new knowledge across the health and health care enterprise. Over the last 35 years, the use of informatics has grown exponentially to improve health and to make better health care decisions. AMIA is committed to being the professional home for the informaticians of today and the driver of informatics’ future.
As the voice of the nation’s biomedical and health informatics professionals, American Medical Informatics Association (AMIA) members play a leading role in advancing health and wellness by moving basic research findings from bench to bedside, and evaluating informatics interventions, innovations, and public policy across settings and patient populations.
“First, Informatics,” said Jeff Smith, VP of Policy at AMIA. “We describe informatics as the systematic collection, analysis, and application of data. Second, informatics is a team sport. AMIA prides itself on being a multidisciplinary organization that spans the continuum of biomedical and clinical research, care delivery, and population and public health.” This positions AMIA and its members to leverage informatics to solve some of our nation’s most pressing health challenges. “As we look towards 2018, we see numerous opportunities to partner with Research!America and its many alliance members,” Smith added.
For instance, 2018 is the year precision medicine goes mainstream; the year the Cancer Moonshot takes flight; and the year that evermore capable health IT is adopted and used by clinicians to improve patient care. Together, these trends will help us discover more tailored cures, deliver more efficient care, and develop smarter solutions for the betterment of our nation’s health.
In 2018, AMIA will continue an ambitious journey to develop policies and programs that return research results to participants who donated data and biospecimens; provide participants with an ability to have dynamic consent, enabling them to pick and choose which research they want to participate; and provide all patients with access to complete digital dossier of their health information. Giving patients access to all their information — not just a pre-defined set of data — will fuel a huge ecosystem of wellness, health management, and clinical applications.
“While the private sector is primed to innovate across these areas, public policy and funding will be critical, and we will rely extensively on R!A to help make the case,” Smith said.
Specifically, HHS and other federal agencies must move forward to fully implement the 2018 Revisions to Federal Protections for Human Subjects, known as the Common Rule. And some of our most vital agency partners, including AHRQ, CDC, ONC – and yes – NIH, will continue to be targets for budget hawks in Congress and the White House.
AMIA is excited to be part of the R!A family, and looks forward to working through the R!A Alliance to ensure that research remains a top priority in Washington, D.C.